My first holiday season is in full swing and has been filled with lots of quality family time. 😍 This has included two different Thanksgiving dinners and my first boat ride for Mimi’s birthday!
To help digest all the delicious holiday food, I finally got my new feeding tube on 12/2/16. The procedure went well, but we ended up having a family sleepover at CHOC since my airway was swollen from the procedure’s breathing tube. My parents now have more information on how to best advocate for me during my skull surgery on 12/27/16. They decided on a less invasive procedure with a local neurosurgeon they trust. The cool part is that I’ll get to wear a stylish helmet. I’m still deciding on how to decorate my first one…suggestions are welcome!
I recently started hand therapy as well and got my first hand splint. So far, I like wearing it on my right hand and will hopefully get one for the left too.
Also, today I turned 5 months and it was Mommy’s first day back at work. I was extra good and slept most of the day for Daddy and my grandparents. Thank you Mimi and Papa for taking such good care of me!
Thank you for all your love and support this year! Wishing everyone a wonderful and love filled holiday season. XO
Love Always,
Hendrix
