UPDATE: I started my new medication two days ago. The good news is that I went from having infantile spasms every hour I was a awake, to now only having a few so far today. 😁 The bad news is that I have to get shots twice a day and it REALLY does make me super cranky. I feel a little better when my parents hold and keep me moving (bouncing in a chair doesn’t count!). It also doesn’t help that I’m on the verge of getting my top two front teeth. I hope this side effect gets better or it’s going to be a long few months!
Side note: I’ll most likely be in the hospital until mid-late next week since my new medication has to be approved before I can go home. So far, my insurance denied it and my doctor has to try to appeal on Monday. Fingers crossed! 😊
Here’s a picture of me passed out sleeping (while sitting up) after my active and exhausting afternoon. 😴
Happy almost 4th of July!
Love,
Hendrix
