On the Road Again!

“Goin’ places that I’ve never been
Seein’ things that I may never see again
And I can’t wait to get on the road again”

As of my last post I was on the road to recovery from my first real cold. Unfortunately, I relapsed or got something else over the weekend and ended up in the PICU. I’m a little fighter and powering through what the doctors call baby bronchitis 😷.
There was a bit of a mix up though. I thought they said baby “Brachiosaurus” (http://www.nhm.ac.uk/discover/dino-directory/brachiosaurus.html) and was so excited for a dinosaur! πŸ˜€ Who needs a puppy when you could have your very own Little Foot as a bestie?! My parents had to break the news to me gently 😯. So, I’m back to asking for a puppy. 🐢🐾🐩

For now, I’m still at the hospital and am using my super healing powers with the help of your thoughts and prayers (Thank you! I can feel the love!) to go home as soon as possible. They tell me I may have a long road to a full recovery due to my breathing issues, but can eventually rest at home. I’m dreaming of my own bed with cozy blankies. Cheers to being on the road again to recovery!

At 6.5 months and around 15lbs of chunky cuteness: I love πŸ’– listening to music 🎧🎢, practicing my singing voice πŸ˜„ with my mommy (some of my favorites: You are my Sunshine 🌞, Twinkle Twinkle Little Star 🌟, and the Alphabet), when daddy plays guitar 🎻, and the sound of the ocean 🌊. I also really enjoy talking to the cute baby πŸ‘Ά in the mirror. We have so much in common you would think we were related! πŸ™Œ

Love Always,
Hendrix

Talk to Me Goose!

It’s been a rough few weeks getting used to my helmet and working through my first cold. I decided I’m just in training for my future as a fighter pilot though with my tight protective helmet and breathing treatment face mask (see pic). Since I’ve been sticking to my training schedule, I’m finally able to sleep through the night wearing my helmet, breathing clearer, and starting to feel better.

My parents say I’ve been talking a lot more, but I’m just practicing for when I’m in the cockpit talking to Goose. I’ve also been trying to do my daily exercises and all my parents want to do is snuggle. I love snuggling just as much as the next baby, but I need a little room to fly every now and then. I’m definitely looking forward to my first official flight!

A special thanks to Miss Kathy, Mimi, and Papa for taking such good care of me while my parents are at work. As always, thank you for your love, support, and prayers.

Love,
Hendrix

Superhero Sensations

I survived my first night wearing my new helmet! It is harder than I expected and tricky to put on and take off. Let’s just say I’m not exactly a fan yet, but I do feel like a superhero when it’s on. Also, I know the more I wear it now, the faster I can get it off. 😁 23 hours a day, here I come!

Love,
Hendrix

Resolutions

Happy New Year! I’m finally feeling more like myself after a rough December (I spent 15 out of 31 days at CHOC). This included 2 procedures, 2 ER visits, and 3 official hospital stays. The bright side is that I was able to come home on New Years Eve and start the new year with my family. I was also excited to ring in the new year sleeping in my own bed. What a treat!

My new year’s resolution is to focus on growing and making up for my set backs in 2016. I promise to not fuss and make the most of my tummy time, PT, OT, and hand therapy. I will also work on going to bed earlier and sleeping more at night for my parents. Currently, I like to stay up until 10 or 11pm and wake up for the day at 10 or 11am. I’m definitely not a morning person so this might be the hardest part. Wish me luck!

Love,
Hendrix

P.S. I turned 6 months and get my helmet tomorrow!